Participatory Health Research (PHR) Work Group
The Participatory Research in Primary Care Work Group promotes and supports collaborative research partnerships in primary care together with patients, communities and other stakeholder partners. Our goals include jointly collaborating on products that increase understanding and capacity for a participatory approach in primary care research; supporting primary care researchers and professionals undertaking participatory research; and advocating for participatory research policy within relevant research and healthcare organizations.
U.S. Co-chair: Michele Allen, MD, MS
Non-U.S. Co-chair: Anne McFarlane, PhD
Most recently operating as a Special Interest Group (SIG), this group joined the Committee for Advancing the Science of Family Medicine (CASFM) following the NAPCRG 2015 Annual Meeting. Please check back for products.
- MacFarlane A1, Galvin R2, O'Sullivan M3, McInerney C4, Meagher E3, Burke D3, LeMaster JW5. Participatory methods for research prioritization in primary care: an analysis of the World Café approach in Ireland and the USA.Fam Pract. 2016 Sep 27. pii: cmw104.
- Macaulay AC. Participatory research: What is the history? Has the purpose changed?. Family Practice (2016 - advance access - first published online: December 18, 2016). 2016
- PR1 CASFM 2016 Methods Pre-Conference: Advancing Primary Care Research. Presented on Saturday, November 12, 2016 by Tyler Williamson, PhD; Christopher P. Morley, PhD; Gillian Bartlett, PhD; Chester H. Fox, MD; Lee A. Green, MD, MPH; Joseph W LeMaster, MD, MPH; Maeve O'Beirne, MD, PhD; Jon Salsberg, PhD; Hazel Tapp, PhD.
- Taxonomy of Patient and Community Engagement. Jon Salsberg, PhD; Michele L. Allen, MD, MS; Joseph W LeMaster, MD, MPH; Donald Nease Jr, MD; John M Westfall, MD, MPH; Linda Zittleman, MSPH on 11/13/16 1:45 PM - 4:45 PM Broadmoor F. Objectives: To bring together patients, community members, providers and researchers – novice and seasoned – with an interest in engaged research, to develop a taxonomy of patient and community engagement.
- Ramsden V, Salsberg J, Herbert C, Westfall J, LeMaster J, Macaulay AC. Patient and community oriented research: How is authentic engagement identified in grant applications? Canadian Family Physician. January 2017, vol.63 no.1 74-76. 2017
- Salsberg J; Macridis S; Garcia Bengoechea E; Macaulay AC; Moore S. Engagement Strategies that Foster Community Self-Determination in Participatory Research: Insider Ownership Through Outsider Championship. Family Practice (Advance Access - first published on line 18 Feb. 2017). 2017
- Salsberg J; Macridis S; Garcia Bengoechea E; Macaulay AC; Moore S. The Shifting Dynamics of Social Roles and Project Ownership over the Lifecycle of a Community-Based Participatory Research Project.Family Practice (Advance Access - first Published online - 21 Feb 2017). 2017.
- Poster presentation at Ireland’s Annual Scientific Meeting which was hosted by the University of Limerick, March 9-10 2017. Secondary data analysis to build the evidence base for ethnic minority and migrant health in Ireland: a participatory health research project. NVillarroel,-Willians A MacFarlane, M Roura, A Basogomba, M Adshead, J LeMaster, F O’Reilly, A O’Carroll, D Nurse, J Whitney, C Collins, S Severoni, T O’Dowd, K Balanda, A Hannigan
- Poster presentation at Ireland’s Annual Scientific Meeting which was hosted by the University of Limerick, March 9-10 2017. Investigating the implementation of an ethnic identifier in primary care: A participatory health research study. MRoura, A Hannigan, N Villarroel-Williams, A Basogomba, M Adshead, J LeMaster, F O’Reilly, A O’Carroll, D Nurse, J Whitney, C Collins, S Severoni, T O’Dowd, K Balanda and A MacFarlane
- Salsberg J, Macridis S, Delormier T, Hovey R, Andersson N, McComber A, Macaulay AC. "Engaging communities to identify needs and develop solutions: Participatory research incorporates community voice in all aspects of health research decision-making. In, Neil Arya, Thomas Piggott, Eds." Pursuing Health: Intervening to Improve Health Care of Underserved Populations in Canada. Canadian Scholars Press. (in press)
- CASFM - Participatory Health Research: Collaborative Dissemination Planning: Leveraging Partners' Insight and Research (W14). A Workshop presented at the 2019 NAPCRG Annual Meeting on November 17, 2019. Lead Presenter: Jon Salsberg, PhD
- Two members of the work group are collaborating on, and were awarded a grant by the Health Research Board (Dublin, Ireland) for a participatory health research project about ethnic minority health for a three year project February 1 2017- Jan 31 2020). View: http://www.ul.ie/engage/node/391
The document, "Responsible Research with Communities: Participatory Research in Primary Care," together with the recommendations for NAPCRG, was adopted as organizational policy, by the NAPCRG Board of Directors and membership at the NAPCRG Annual Meeting on November 6, 1998 in Montreal. This document grew out of a successful workshop on Respectful Research With Communities at the 1996 NAPCRG Annual Meeting. The NAPCRG membership and Board of Directors supported and financed development of this document. The Task Force solicited comments from interested parties and incorporated many suggestions into the revisions. This policy was updated in 2015.
Download the full 1998 NAPCRG policy.
Download the 2015 updated policy.