SRFP037: Evaluating citizen and community engagement in the co-design of the EMBOLDEN intervention

Maggie MacNeil, PhD; Caroline Moore; Julie Abelson, PhD; Penelope Petrie; Rebecca Ganann, PhD; JANET ADAMS; Aref Alshaikhahmed, BA, Certificate in Leadership in Community Engagement

Abstract

Context: Partnering with citizens and community in health research can improve health outcomes, enhance the health care system and is increasingly an expectation of Canadian granting agencies. Though the science of citizen and community engagement in research has rapidly expanded, less is known about the impact of engagement approaches on research outcomes. Rigorous approaches to evaluating participatory approaches in health research have been called for, to ensure scarce health care resources are aligned with citizen’s needs and priorities and allocated in the most impactful way. EMBOLDEN is an evidence-informed, novel community health intervention to enhance mobility that is co-designed by a 30-person Strategic Guiding Council composed of health/social service providers and older adult citizens Objectives:i) to explore how health/social service providers and older adults perceive EMBOLDEN’s engagement strategies, the engagement context and ii) to understand what is working well, and areas for improvement in EMBOLDEN’s engagement processes. Study Design: Participatory approach to developmental evaluation with a working group of 4 older adult citizen partners who are members of the EMBOLDEN project’s Strategic Guiding Council (SGC) and researchers. Setting: Community-based. Population: Community-dwelling older adults (55+). Outcome measures: Working with older adult SGC members, priorities for evaluation were identified. This group identified focus groups and questionnaire methods to capture these priorities and informed data collection tools. Results: Four older adults of EMBOLDEN’s SGC responded to a SGC-wide invitation to help design the engagement evaluation. The evaluation will prioritize capturing diversity (gender, cultural, organizations); satisfaction, fun, respect; impact of SGC input to intervention; SGC involvement across all stages of research. Findings from surveys (patient-centred evaluation tools) and focus groups will contribute to adaptations and innovations to the EMBOLDEN co-design process as the intervention is implemented in different communities. Conclusions: Older adult research partners have an important role to play in designing, implementing and evaluating co-design approaches. This project contributes to the growing field of citizen and community engagement in research by offering a participatory approach to engagement evaluation that considers diversity, satisfaction, and impact.

Leave a Comment
Jack Westfall
jwestfall@aafp.org 11/21/2021

Terrific poster and presentation. Thanks for your work.

Maggie MacNeil
macnem18@mcmaster.ca 11/23/2021

Hi Jack, you never know with asynchronous posters whether there will be any take up of your work.. thanks for taking the time to look at my poster!

Diane Harper
harperdi@med.umich.edu 11/22/2021

Present your results in Phoenix next year! Thank you for sharing your work with NAPCRG!

Maggie MacNeil
macnem18@mcmaster.ca 11/23/2021

Hello Dianne, I would like to share more fullsome results at NAPCRG next year that would include the qualitative component of this work (which wasn't completed in time to include in this poster). Thanks for taking the time to view and comment on this work.

William R. Phillips
wphllps@uw.edu 11/22/2021

Attractive and effective poster. Important research program and this type of pilot work is very valuable. Hope you continue on this important line of inquiry. Thanks for sharing your work here at NAPCRG. - Bill Phillips

Maggie MacNeil
macnem18@mcmaster.ca 11/23/2021

Hi Bill, thanks for your comments- I am sure the older adults involved in our Strategic Guiding Council will be happy to hear of your interest. I look forward to continuing this sort of work.

maret felzien
maret.felzien@outlook.com 11/23/2021

Nice involvement of your patient partners in this work to help you devise the research question and the process.  It appears they have strong opinions.  

Maggie MacNeil
macnem18@mcmaster.ca 11/23/2021

Hi Maret, I would agree that our partners are incredibly committed to this project and are invested in making change for older people in their neighborhood. They are inspiring!

Arturo Martinez
arturo.martinez.guijosa@gmail.com 11/23/2021

Great job involving patient partners and providing evidence for a new program.

Andy Pasternak
avpiv711@sbcglobal.net 11/28/2021

Very nice topic! Keep up the great work

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