SRFP032: Does Telehealth Improve Care for People with Epilepsy in Saskatchewan? A Mixed-Methods Study

Sareh Miranzadeh Mahabadi, MD, PhD; Vivian Ramsden, PhD, BSN, MS, RN, MCFP (Hon.)

Abstract

Learning Objectives:
1. On completion of this session, participants should be able to describe the study design to be undertaken.
2. On completion of this session, participants should be able to identify how patient-oriented research was applied.

Context: People with epilepsy (PWE) require regular follow-up care. In Canada, patients who are geographically distant from an Epilepsy Care Center struggle with many transport barriers and challenges that impede access to care. Tele-health can offer the best chance to overcome geographic constraints, as well as a lack of mobility or affordability, in providing the necessary care for epilepsy patients. Research question: How do individuals/patients diagnosed with epilepsy feel about receiving care via tele-health rather than in a traditional face-to-face clinic visit? Study Design: This study will be undertaken using community-based participatory research within an explanatory sequential mixed method design commencing with the collection of quantitative data followed by the collection of qualitative data. Setting: Individuals/patients diagnosed with epilepsy living in Saskatchewan, Canada. Population Studied: Inclusion criteria are: eighteen years of age or older; a diagnosis of epilepsy; have attended at least one appointment by tele-health; be able to provide informed consent; and live in Saskatchewan, Canada. Instrument: The Tele-Health Patient Satisfaction Survey will be adapted with a Community Advisory Committee so that it meets the needs of the community but can also be compared/contrasted to data collected in similar situations. Anticipated Results: Tele-health could be effective at delivering healthcare services to the patients with epilepsy. Moreover, patients ‘acceptance and satisfaction in using tele-health’ will be acceptable. Conclusions: Tele-health will see wider applications within the treatment of epilepsy especially those needing regular follow-up care. It also has the potential for improving individual/patient satisfaction.
Leave a Comment
Viv Ramsden
viv.ramsden@usask.ca 11/21/2021

Sareh, I am glad you were able to attend and present this work which has the potential to change practice.

Jack Westfall
jwestfall@aafp.org 11/21/2021

Very interesting research. Great work. looking forward to seeing what comes of this study. Thanks

Scott Tunison
scott.tunison@usask.ca 11/21/2021

Congratulations, Sareh, on your tele-health research. While the concept of tele-health is not new, its application has grown exponentially in the last 2 years or so, thanks to COVID, and I appreciated your interest in extending understanding of patient and physician use of these tools.

Diane Harper
harperdi@med.umich.edu 11/22/2021

Present your results in Phoenix next year! Thank you for sharing your work with NAPCRG!

William R. Phillips
wphllps@uw.edu 11/22/2021

Great. Telehealth has grown over these COVID days, but it has a different history and use in rural areas than elsewhere.  How will this program change the dynamics among patients, PC clinicians and consultants  Thanks for sharing your work here at NAPCRG. - Bill Phillips

Andy Pasternak
avpiv711@sbcglobal.net 11/28/2021

Very nice project. I think TH has a real role here.

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