SRFP044: Exploring how patients and members of the public are recruited to boards, groups & panels in patient-engaged health research

Elena Koskinas, MSc, CAT(C); Meghan Gilfoyle, MSc; Jon Salsberg, PhD

Abstract

Context: Meaningfully engaging patients and members of the public in health research has become widely recognized as an important approach for bridging the gap between research and primary-care practice by increasing the relevance of research for those who benefit from its findings. Specific approaches to engagement vary, but commonly include partner panels, advisory boards, or stakeholder groups, that are active throughout all stages of research. The breadth of and optimal strategies for recruiting patients and members of the public to such panels, boards or groups remains unclear. Specifically, literature exists that discusses recruitment, selection, and engagement strategies in health research, but lack consensus for optimal approaches within various health research contexts. Objective: To identify the breadth of and optimal strategies used to recruit patients, carers, and other members of the public to advisory boards, groups, or panels, within and across diverse participatory health research contexts. Study Design: This review follows the nine-step scoping review framework set out by Peters et al., an elaboration on Arksey and O’Malley’s original scoping review framework. Several databases are explored to capture the full scope of the available literature including Medline (PubMed), Medline (OVID), EMBASE, CINAHL, PsychINFO, Scopus, Web of Science and Cochrane Library. The search strategy was co-created amongst the research team, international participatory health research experts and a research librarian. Two independent reviewers will screen articles by title and abstract and then at full text based on pre-determined inclusion/exclusion criteria. A third reviewer will arbitrate discrepancies. Anticipated Results: The data will be presented in a tabular format with a narrative summary discussing how the research findings relate to the overarching research question. A thematic analysis will also be completed using qualitative description. These findings will then be reviewed with patients and other members of the public in a workshop format. Preliminary results will be presented in November 2021. Conclusions: By reviewing the strategies used to recruit patients, carers, and other members of the public as co-researchers within participatory and patient-engaged health research, findings will help researchers who struggle to find appropriate routes to meaningfully involve patients and the public in co-creating the evidence that informs their care.
Leave a Comment
Jack Westfall
jwestfall@aafp.org 11/21/2021

Wow, great study. lots here. thanks for this robust effort and reporting. Thanks for sharing with NAPCRG.

Meghan
meghan.gilfoyle@ul.ie 11/21/2021

Thanks Jack! Much appreciated! 

Diane Harper
harperdi@med.umich.edu 11/22/2021

Do people divulge this level of detail honestly? Present your results in Phoenix next year! Thank you for sharing your work with NAPCRG!

maret felzien
maret.felzien@outlook.com 11/23/2021

Interesting work.  Were you able (or will you be able) to engage patient/public partners in the development of this idea and review or as you move forward with it? I agree... will look for this next year.    

Arturo Martinez
arturo.martinez.guijosa@gmail.com 11/23/2021

Great detail and look forward to seeing this support policy improvement to develop meaningful research with patient partners.

Andy Pasternak
avpiv711@sbcglobal.net 11/28/2021

Thanks for bringing this work to NAPCRG. I also like the green color scheme for a poster from Ireland! Nice touch!

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