PRP081: Successes and lessons learned: nursing home dementia symptom management since COVID-19 in Virginia.

John Kerns, MD; Jonathan Winter, MD; Christian Bergman; Rebecca Etz, PhD

Abstract

CONTEXT: A significant number of Virginia long-term care facilities (LTCF) still rely heavily on dangerous drugs to manage dementia symptoms. Pilot data indicate that COVID stressors have made dementia symptom management more difficult. LTCF clinician explanations for shifts in drug and non-medication dementia management strategies due to COVID and other ongoing recent challenges is unknown.
OBJECTIVE: To examine what Virginia LTCF clinicians report via comments and open-ended survey questions regarding why changes in dementia management may have occurred since COVID in Virginia LTCF, closely examining successes and lessons learned.
STUDY DESIGN: An iterative online survey of a sample of Virginia LTCF providers purposefully chosen to include clinicians in areas of poor social determinants of health (SDH) known to correlate with higher prevalence’s of antipsychotic use. Open-ended questions and comments analyzed in an ongoing exploratory fashion via a combination of template analysis, editing, and immersion and crystallization. Initial survey questions and codes derived from previous studies of dementia management in Virginia, input from statewide geriatric and LTCF organizational partners helping to develop and field the surveys, and our clinical experience managing dementia symptoms. Codes and survey questions honed/expanded iteratively to include emergent findings from participant responses and suggestions from our partners.
PARTICIPANTS: Physicians, nurse practitioners, physician assistants, psychiatrists, other prescribing clinicians managing dementia in Virginia LTCF.
OUTCOMES: Reasons for LTCF drug and non-drug dementia management choices/availability and disparities in care since COVID, as reported by Virginia LTCF clinicians. Analysis emphasis on successes, lessons learned, and evaluation of potential differences related to provider type and SDH.
RESULTS: Clinician identified reasons for changes in drug use and other management of dementia symptoms during COVID, delineating achievements as well as barriers. Similarities/differences by clinician type and SDH.
CONCLUSIONS: LTCF have largely borne the brunt of the COVID pandemic. Identifying recent successes and ongoing challenges in management of dementia symptoms, possibly magnified in areas of low SDH, can inform policy makers, and could point to proven interventions as well as needed resource supports to address any SDH disparities detected.
Leave a Comment
Nadir
11/19/2021

This is great. Thank you

Bill Kerns
11/20/2021

We appreciate your comment! We would like to share some of the survey responses: SUCCESSES (all are uncorrected quotations): Compassionate visits have been allowed and helpful having more family visits from the windows or outdoor social distancing events have helped with depression creativity to engage residents on a one to one level and social distancing socialization outdoor visitation Residents socializing more among themselves CONCERNING CHALLENGES (all are uncorrected quotations) almost no volunteers and staffing is a tremendous challenge The management has mostly stayed the same, but far more patients are symptomatic. Some of the patients have lost ground without socialization, and will not regain I had a patient call her son in the middle of the night. She was begging him to get her out. She said their were aliens all over the place and she was incarcerated. How sad. But that is what it truly seemed like to them. Use of masks by staff has caused fear and confusion for dementia patients and decreased ability to communicate with patients due to mouths being covered by masks and many older patients having hearing deficits. Pressure from facility to minimize Covid-related symptoms or changes. I lost 1/4 of my nursing home dementia patients to Covid. They just stopped eating. There was pressure to sign to death certificate as "failure to thrive, to improve the facility's statistics.

Bill Kerns
11/20/2021

We appreciate your comments! We would like to share some of the survey responses: SUCCESSES (all are uncorrected quotations): Compassionate visits have been allowed and helpful having more family visits from the windows or outdoor social distancing events have helped with depression creativity to engage residents on a one to one level and social distancing socialization outdoor visitation Residents socializing more among themselves CONCERNING CHALLENGES (all are uncorrected quotations) almost no volunteers and staffing is a tremendous challenge The management has mostly stayed the same, but far more patients are symptomatic. Some of the patients have lost ground without socialization, and will not regain I had a patient call her son in the middle of the night. She was begging him to get her out. She said their were aliens all over the place and she was incarcerated. How sad. But that is what it truly seemed like to them. Use of masks by staff has caused fear and confusion for dementia patients and decreased ability to communicate with patients due to mouths being covered by masks and many older patients having hearing deficits. Pressure from facility to minimize Covid-related symptoms or changes. (italics added) I lost 1/4 of my nursing home dementia patients to Covid. They just stopped eating. There was pressure to sign to death certificate as "failure to thrive, to improve the facility's statistics. (italics added)

Diane Harper
harperdi@med.umich.edu 11/21/2021

LTCF are certainly an awful place for our elders to be, especially during COVID. Future federal funding is necessary to make the patient-centered experience of dying more dignified.

Bill Kerns
bkerns@valleyhealthlink.com 11/22/2021

I appreciate your comment, and couldn't agree more. Thanks! Bill

Jack Westfall
jwestfall@aafp.org 11/22/2021

Great poster and abstract. Thanks for sharing at NAPCRG

Bill Kerns
bkerns@valleyhealthlink.com 11/22/2021

Thanks, Jack. Good to have your support. Bill

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