PCR004: Addressing COVID-related issues from patient and clinician vantage: Three research questions for future primary care inquiry

Maret Felzien, MA; Vivian Ramsden, PhD, BSN, MS, RN, MCFP (Hon.); Alan Pavilanis, MD; Jessica Sand, MPH; Raymond Haeme, MS

Abstract

Context: In a virtual pre-conference setting, over 70 participants gathered to discuss the COVID-19 pandemic’s impact on patient-centered primary care research and identified three research questions from eight broad topic areas relevant to primary care research, the effect of the pandemic, and associated public health restrictions. The topics were mental health, long term care, vaccinations, elderly and isolation, care delivery, disparities, chronic illness and telehealth. Objective: To capture stories from participants’ experiences and identify primary care research topics in each of the COVID-19 related areas through a series of guided questions led by a PaCE Council member. Study Design: Narrative inquiry using a moderated conversation for each topic areas to capture participants’ experiences. Four key questions were presented in an iterative process, including, “what was your experience in topic area; what worked during COVID-19 for topic area; what are opportunities for further research about topic area and COVID-19; and can anyone give the rural perspective on topic area?” Setting: PaCE Preconference at 2020 NAPCRG Annual Meeting managed through Zoom and Zoom Breakout rooms. Participants worked in small groups for more intimate conversations. Population: 71 self-selected, diverse participants including front-line providers, patients, community partners and researchers from Canada, the US, New Zealand, Ireland and the UK. Forty-four participants were first time attendees to a PaCE event. Results: From eight priority areas, the breakout groups determined a single focus question for each topic area. Through polling, the entire group distilled the eight questions into three priority questions relating to the pandemic: 1. Elderly/Isolation: Does an assessment of total health using a proactive outreach approach impact overall elderly health outcomes? 2. Mental Health: Develop an identification tool to assess mental health care needs during a public health crisis to characterize who needs what treatment – both for patients and clinicians. 3. Telehealth: To what degree does Telehealth improve access to primary care and reduce ER admissions or hospital readmissions? Conclusions: A diverse, self-selected group of participants developed relationships, boke into working groups, shared lived and first-hand experiences of the COVID-19 pandemic around a determined topic, distilled and focused the stories, and moved those into highly relevant research questions.
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Jack Westfall
jwestfall@aafp.org 11/19/2021

wow, great work. go PaCE. this is terrific. thanks

Judy Belle Brown
jbbrown@uwo.ca 11/19/2021

Excellent work and the voice of the patient/community in establishing research priorities is essential if our work is to relevant and meaningful!! Thank you!

Lorraine Bayliss
l.bayliss@sympatico.ca 11/20/2021

Definitely a WOW! As a senior living with the worst of the chronic health conditions (50 years type1Diabetic plus living with my husband who is being treated for metasisized cancer) this initiative to support and improve quality of life, given the challenges during a pandemic really, resonates with me. Listening to the patient voice as the first step leaves me with a great deal of gratitude. Love to learn more about findings and next steps to improve quality of life during a pandemic for the population you are targeting. (Five stars)

Brenda Andreas
brendajeanandreas@gmail.com 11/20/2021

Living in rural where access and resources are a one stop these questions are a nice balance for the concerns of when, where and how to get care these past many months.  Nicely done.

Viv Ramsden
viv.ramsden@usask.ca 11/21/2021

Maret et al. Really well done. It is amazing what can be done by the PaCE Team! Now, we have to write the paper.

Diane Harper
harperdi@med.umich.edu 11/21/2021

Yes, write the paper!!

Henry Olaisen
holaisen@aafp.org 11/21/2021

Super relevant work and really like your communication approach too. Narrative inquiry - so powerful for building consensus and concentrating scarce resources to focus on what matters most. PS. QR code did not work for me.

Gillian Bartlett
gillian.bartlett@health.missouri.edu 11/22/2021

So wonderful to see so many patient/community/clinician partners on this poster! Fits very well with current concerns that issues with social isolation and mental health will be the next wave of the pandemic. Great work.

Richelle J. Koopman
koopmanr@health.missouri.edu 11/22/2021

Enjoyed this, Maret and Jessica et al!  I feel like these research questions would help inform public messaging too! Thanks

Emily Godfrey
godfreye@uw.edu 11/22/2021

Great job PaCE! I liked seeing methods employed that allow the patient-partners to maintain control of the data.

Ann Macaulay
ann.macaulay@mcgill.ca 11/23/2021

Such great work- stellar example of outcomes from multi-stakeholders engagement

Christina Holt, MD
holtc@mmc.org 11/23/2021

wonderful work - consider this journal - – Journal of Participatory Medicine https://jopm.jmir.org/about-journal/focus-and-scope

Andy Pasternak
avpiv711@sbcglobal.net 11/26/2021

Always great work PACE! I think the social isolation was key for our seniors As much as we wanted to do Telehealth, when we could start seeing patients in person, our elderly wanted to come in to see us just to get out of the house!

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